We hit the road for Cleveland yesterday morning at 9:15, arriving a little late to our appointment with the radiologic oncologist. No worries, though; after being shuffled back and forth from one floor to another, we finally connected with him and he laid out an initial plan for the next week or so.
I’m glad we saw him first, as some of what he said was hard to hear. The initial reaction to the pathology from our primary oncologist was that at first glance, Michael has a small brain tumor. According to the radiologic oncologist who examined the imaging in greater detail, there are three tumors in his brain. “At least three,” to be specific. We asked some questions about the planned gamma knife radiation surgery, and discussed other options as well. It was decided that gamma knife was the preferred procedure (as opposed to brain surgery or whole-brain radiation), as it is minimally invasive and doesn’t carry the more dramatic side-effects of whole brain radiation, such as memory loss, hair loss, and vision issues.
While this doctor pulled no punches with regard to the stage of Michael’s disease, he was confident that they could zap these tumors — or at least shrink them — with the gamma knife.
Then it was on to see the neurologist who’ll perform the procedure. He walked in the room, and it was like a performance. Energetic, friendly, funny guy, and definitely not what we were expecting! I fought the urge to giggle at his likeness to Eugene Levy, so I snapped a surreptitious photo for later sharing. haha
He had us both laughing and feeling a bit more at ease, and we appreciated that.
Bottom line with both doctors was that we can’t move forward with chemo for the lung cancer until the brain issue is sorted. I confess it’s been frustrating that we are now 23 days out from his diagnosis, and he has received not one single treatment. This patience thing, lemmetellya…good thing we both already have a head full of silver hair. We’re keen to get this train moving.
All was said and done by 3:00, and we were both mentally exhausted and starving. We stopped to pick up dinner at Chipotle in Brunswick, took it home and wolfed it down. Then our new sleeper sofa arrived, and here was baby boy to the rescue, schlepping it around and assembling it at 9:30 p.m. after he’d worked all day. He’s a good son.
Today, we travel to Columbus to see about getting Michael a car to take to treatments once school starts. He may not always feel like driving, so Mavis has graciously consented to take him to Cleveland when I can’t go with him, which is a great comfort. I cannot overstate my appreciation and love for my family members who have flown to our side, both physically and otherwise. I know it’s hard on four of Michael’s children who live in Texas, but they’re in contact with us every single day, and we’re all discussing a visit soon, which brings their father and me great joy.
And speaking of comfort and joy, have I thanked you all for praying for him and for our family? A friend texted yesterday and wanted to know how Michael was doing, but admitted to being reticent to ask because “everyone is probably asking you the same questions.” On the contrary, I will never tire of talking about his bravery, humor and grace in the face of this vicious disease.
More updates soon! Thanks again for coming along on this journey with us.